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Aging with Down Syndrome Resources

We are pioneers in this period of aging with Down syndrome. I believe the more we can share what we find helpful the better lives our loved ones will have. Keep checking this page as I will continue to update it as I learn of new resources. Be sure to let me know if you find something that may be helpful, too.

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Websites

Find websites of individuals, groups, or other organizations that support adults with Down syndrome.

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Printables

Watch this space grow as I create handouts and information sheets to help you to support an adult with Down syndrome

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Books & Periodicals

Find books, articles, and other publications written by family members, individuals with Down syndrome, or those who support them.

Websites

Adult Down Syndrome Center

The Adult Down Syndrome Center is located in the Chicago area and serves residents of Illinois. They have a resource library that is filled with valuable information.

https://adscresources.advocatehealth.com/

National Down Syndrome Society

The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome. They have resources related to adulthood, aging, caregiving, and health and wellness.

https://ndss.org/resources?lifespan=45

The National Task Group on Intellectual Disabilities and Dementia Practices

The NTG's mission is to advocate for services and supports for people with intellectual disability and their families who are affected by Alzheimer's disease and other dementias.

https://www.the-ntg.org/

National Down Syndrome Congress

The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. When we empower individuals and families from all demographic backgrounds, we reshape the way people understand and experience Down syndrome.

https://www.ndsccenter.org

Global Down Syndrome

GLOBAL’s primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the United States committed solely to research and medical care for people with Down syndrome. 

https://www.globaldownsyndrome.org/

Down Syndrome with a Slice of Autism

This blog is all about Nick’s world….The rest of us are just trying to keep up.  Each blog post gives a glimpse into how Nick's mom, Teresa navigates co-occurring Down syndrome and autism (DS-ASD) with her son, Nick who is 28 years old. Topics are geared towards a dual diagnosis of DS-ASD. The information is provided for parents, teachers, caregivers, physicians, therapists, and anyone touched by a child or adult with intellectual and developmental disabilities.

https://nickspecialneeds.com/

Sky

Coming Soon

Life Planning Checklist

General

Watch this space grow as the site is developed

Printables

Books & Periodicals

Want to see your book or periodical included? Contact me, and let's chat.

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